Tom Keane, writing in this Sunday’s Boston Globe, trots out all of the old fears and misconceptions about assisted suicide to scare people in Massachusetts to believe it is not an option that should be available to those who might opt for it. Keane believes that others — not you — know what’s best for you. Even when you’re dying of a terminal disease.
That’s too bad. Because we now have a couple of years of evidence from Washington state and nearly 15 years of evidence from Oregon — who have allowed for assisted suicide — that demonstrate fears about allowing assisted suicide are based largely in irrationality, not data.
Assisted suicide for those who are at the end of their lives, often in unbearable pain, is an option that should be available for all Americans. It is unconscionable that Keane believes he knows what’s best for you and I when it comes to our end-of-life decisions. It’s my life, and it should be my choice to die with dignity.
I don’t want Keane — or the government — telling me I have to suffer just because medicine or some random doctor says I have to. I want to die on my terms — in peace, not in pain.
Keane’s argument is a bit irrational itself, appealing to emotion rather than logic. Rather than rolling out data or actual cases where his fears have been realized in the U.S., he instead appeals to our fears:
A diagnosis of a terminal illness can easily leave patients despondent and considering taking their lives; the new law legitimizes that contemplation.
No, the new law recognizes the fact that terminal illness is, by definition, a death sentence. The actual length of one’s life might vary from that point, but it almost never changes the basic fact — you’re going to die a lot sooner than you imagined.
The new law also legitimizes what patients have simply been doing on their own for centuries. I’m not sure that’s a bad thing, when the law catches up with actual citizens’ practice.
But to scare you further (because, again, this is an argument based upon emotion, not logic), Keane trots out a scary letter:
Several years ago, in fact, one Oregon health plan, having refused to pay for medication that might prolong a patient’s life, sent her a letter proposing suicide as an alternative (and said it would be happy to pay for those drugs). With the new law in place, the economic incentive for Massachusetts insurers would be to encourage the cheaper way out as well.
Keane fails to mention an important component of the case ((The case of Barbara Wagner was apparently plucked, without disclosure, from an anti-assisted suicide website called the Patients Rights Council)) — many health plans limit coverage of prescription drugs meant solely to extend someone’s life, but cannot cure the cancer itself. ((Note, too, that the case is from 4 years ago — apparently the most recent incident Keane could turn up.)) It’s a slightly more complex case than Keane summarizes above in a single sentence. The actual problem appeared to have little to do with assisted suicide, but a lot to do with the slow-moving wheels of bureaucracy keeping its policies up-to-date:
“We are looking at today’s … 2008 treatment, but we’re using 1993 standards,” Fryefield said. “When the Oregon Health Plan was created, it was 15 years ago, and there were not all the chemotherapy drugs that there are today.”
So the best example of the “evils” of an assisted-suicide law appears to be an insurance company letter that was misinterpreted by its recipient? Really?? ((Sorry, I was really looking for the roaming death squads, and the evil heirs waiting in the wings to take their inheritance a few months early.))
And sometimes his attempt at logic just breaks down altogether:
Many of the objections to the proposed law are practical. “Terminally ill,” for example, is defined as death within six months. Why not a year, or for that matter 50 years (in which case, I guess, a whole lot of us would be eligible)?
Umm, because phrases need to mean something, no? This is the definition other states have used, and despite some people’s misgivings, seems to be a definition that has some substance to it. Yes, it may be arbitrary, but what does it matter? Isn’t most law, in fact, somewhat arbitrary? ((If you need examples in Massachusetts, I could rattle off a few dozen off the top of my head — that’s the nature of the law. Look at the difference between a misdemeanor theft and a felony theft — it’s an arbitrary dollar amount set, in most cases, many decades ago — not taking into account inflation or changing times. ))
Last, just because our knowledge can never be absolute, that’s a poor excuse to be against something:
Granted, there may be times where life is meaningless and oblivion really is the better option. But none of us, even in extremis, can really know.
We can’t really know about a lot of things, yet that doesn’t stop us from seeking answers. That’s the basis of most religions — and most medicine. Doctors don’t know when they cut into you that it will actually improve or save your life. An unexpected complication and that minor surgery could turn into a surgery that takes your life.
That’s the nature of medicine — and of life.
Assisted suicide is a simple, reasonable and dignified choice that individuals at the end of their lives should be allowed greater access to. The only reason to withhold such access is the belief that government knows better than you what’s best for you at the end of your life.
I believe that few of us would agree that government knows what’s best for us in our personal health decisions. With all things being equal at the end of your life, would you rather gain a few weeks of life living in a hospital bed, heavily medicated, with tubes running from you, with machines helping you “live,” or would you rather die in a place and at a time of your own choosing?
Even if you choose, “hospital bed,” shouldn’t that choice be yours, and yours alone?
Read the full article: Assisted suicide ballot question brings Kevorkian to Massachusetts
10 comments
Thank you for this brave and informative piece about such a controversial and important topic. Your article helped me formulate my own argument in a logical and dispassionate manner while helping me anticipate the often irrational and emotionally laden counterargument.
I hope we move toward these changes as a country.
I was very disappointed in John Grohol’s critique of Tom Keane’s article. While Tom Keane tried to present both sides of the issue, Mr. Grohol presented a one-sided opinion piece which side-stepped and clouded many of the issues around assisted suicide.
Mr. Grohol implies that failing to pass an assisted suicide law would put “the government” in the position of choosing whether people can die or not. Suicide is not illegal and anyone can make an advanced directive or appoint a health care proxy with instructions as to when, and under what circumstances s/he wants to have life-sustaining medical treatment — even food and water — withdrawn. And as Tony Nicklinson in England just demonstrated, anyone can kill himself by refusing to eat or drink while being sedated to ease the process during the 4-7 days it will take to die.
Though suicide is not illegal, our society has a public policy against suicide. Yet assisted suicide would put into law a discriminatory policy of effectively making suicide prevention available only to certain persons. For example, when non-disabled people say they want to kill themselves, they they will be offered suicide prevention services, social and psychological help and medications to treat the “pathology” of suicidality. They may even be restrained against their will to prevent their acting on these feelings. Yet when ill or disabled people express the same feelings, society not only sees suicidality as a rational response to disability, assisted suicide laws take it a step further; while most suicide attempts in the general population fail, assisted suicide will practically guarantee that the suicide attempts of people with disabilities or terminal illness will succeed. This is a reflection of society’s placing a lower value on the lives of people with disabilities, or the “better dead than disabled’ point of view that those of us with disabilities encounter every day.
The “terminal illness” / six months to live diagnosis is often wrong, or simply ignored. In each year that the Oregon assisted suicide law has been on the books, people have outlived the six-month prognosis.
It’s impossible to know how many people have outlived their diagnoses in Oregon and Washington, or to get complete information about the effects of the assisted suicide laws, because the state reports are drawn from intentionally misleading and incomplete data, which is destroyed as soon as the report is produced (thus making any long-term analysis impossible). For example, assisted suicides are not counted as such, but as deaths caused by the underlying condition. Also, doctors who prescribe the lethal drugs are not required to report it, and there is no oversight to ensure that their reports are accurate or complete.
Not only do the data provide insufficient information, there are no provisions to investigate potential abuses by doctors, insurers, institutions or family members under the assisted suicide laws. And with an elder abuse rate in Massachusetts of nearly 1 in 10 where financial exploitation tops the list of offences, do we want to risk passing a law with such meager safeguards that really serves no purpose but to discriminate against ill and disabled people?
Keane also provided a very one-sided view (quoting from an anti-assisted suicide website, but not mentioning he was doing so, for example). He’s just better at covering up his bias, whereas I let my readers know my clear bias on an issue up-front. It’s called transparency, and it’s something I believe more print journalists should do more of.
There are problems without a legal version of suicide (sorry, but suicide is actually illegal in many states). Insurance companies, for example, won’t pay a death benefit.
So rather than implement the right to choose when to die with dignity, you’re a-okay with just letting a person die of starvation — an excruciatingly cruel and painful death? What is this, the Middle Ages?? In this day and age of enlightened medical care and treatment, would we ever ask a person to put themselves through such a medieval practice?
Trotting out Keane’s argument about “never really knowing” how long we really have to live is just treading the same ground. You don’t know whether you’re going to die in an automobile accident tomorrow either, but most of us seem to be pretty okay with the lack of that information — even though we may only have a day to live.
Why do we expect medical and health decisions to be absolute and perfect? Why does it matter if they aren’t when it comes to whether you have 6 months to live or 8 months to live? If you’re 80, you’ve already lived 960 months. A difference of 2 months is 0.2% of your life. If that extra 1/5th of a percentage point is so important to you — that’s great, make that decision for yourself.
Don’t make it for me or the rest of us. If we’ve lived a good life, I’ll be ready and at peace with dying on my terms.
Last, if 15 years of evidence provides “insufficient information,” I’m not sure how many more years would provide more. 15 years’ worth of data is usually more than sufficient for most people to feel comfortable nobody is abusing this option in the way the critics suggest they would.
If you’ve ever watched a loved one die in pain only because medical technology kept them alive, and doctors were afraid to prescribe any additional pain-killers, you’d know this is a no-brainer. Nobody should have to suffer in pain just because we emphasize length over quality of living.
John
Dr. John
I agree with your article well opinion on the sensitive subject I’m all for assistant suicide because I have witness at hand a love one that begged us to end their pain but we couldn’t by law. They suffered tremendously and we felt their pain too. It was hard on our family. Honestly law should change patients should have. The right to end their life if they are terminally ill
Dr. John Grohol’s reply to you, tigrlily61, says what needs to be said and is an excellent reasonable and logical response to your post. I only wanted to add one more point.
You say, “For example, when non-disabled people say they want to kill themselves, they they will be offered suicide prevention services, social and psychological help and medications to treat the “pathology†of suicidality. They may even be restrained against their will to prevent their acting on these feelings.”
In actual reality, that “ideal” process very very rarely actually happens. With such a shortage of qualified mental health professionals of all kinds, cuts backs, lack of psychiatric community support services & lack of Psych bed, what usually happens in real life is that the suicidal person is put on a waiting list to see a psychiatrist – sometime within 6 – 8 months. In the meantime, their family physician may prescribe different or more psychotropic medications – and send the patient away to take the pills and check back in 2 weeks to a month to see if the meds are making any difference. The suicidal person, whose every moment is agony, is sent home with no real support, backuup, essentially told to “postpone their suicidal crisis”. IF they can get admitted to a psychiatric bed in hosp, they are lucky. So how seriously does our society actually & in fact act to prevent suicide. What society says they believe and what is done in fact are two very different things.
Ironically, as a nurse, I have also seen any number of terminally ill patients suffer the agonies of hell, while the medical system did all it could to keep them alive longer. These people were going to die. Period. It was a question of when. Why should they be required to suffer – and why should their families suffer along with them, helpless to do anything but watch. It’s a cruel system that we do not even impose on animals. Every person should have the right to choose a dignified death with the help of medical professionals. If you don’t wish to choose this and would rather wait for “nature” to take it’s course, then fine. Do as you wish. But do not try to make decisions for other people.
This debate is always going to provide for passionate views and that too is ok! I also feel passionately about this issue and no-less so as an Englishman living in the UK.
Last weeks tragedy (Tony Nicklinson)was a tragedy because despite Mr Nicklinson ably demonstrating his full mental capacity, he was denied his wish to be freed from his imprisonment.
Tony’s family and supporters all had to suffer before his death, during, and now perhaps forever more, knowing they too were powerless to provide the one thing the person they loved wanted.
Is it correct to hold on to the belief that the prognosis, procedure and facilitation should only eventually be available or even considered when ‘we’ have perfection? That’s plain ridiculous and is borne out of the fear of those who are unable to stand the heat with such a powerful decision. That is fine in itself, but to then preach that we must all be afraid is simply propaganda in my view.
Here’s a deal I would consider. Reduce by 95%, the number of fatalities and seriously injured patients who have died or been the victims of iatrogenic harm in the US, UK, and the worlds hospitals and healthcare facilities and then we can talk greater standards by which to judge what needs to be created to provide at least consideration for those who truly believe they wish to die.
It is not beyond the wit of modern medicine and law to create expert panels, administration, etc to provide a level of ‘best practise’ and reasonable safeguarding, but to do nothing is abdicating mankind’s ability to learn, make mistakes and grow.
Watching the media reports over the past 7 years, working in emergency medicine for almost 20 years I have come to understand how humans behave in their final moments. Now, as a counsellor I see yet more depth to the human soul and humanity. What I witnessed and now feel after last week was horrific, barbaric and shocking. I am almost ashamed to be part of this so inept argument and society in regards to ‘right to choose’.
Too many intelligent words;not enough experience. As a 68 year old woman/mother/caretaker…
I have witnessed death. Parents, friends, lovers of many years. My dear Bill hung on for 9 weeks without food, only lemon swabs and occasional drops of Dr. Pepper. I was with him 24/7. He died in my arms holding, no grasping, my hand. My twin daughter died in an accident; her fiance who was driving,committed suicide on his 51st birthday. 3 months after. In my grief I too wanted to die. My older daughter and surviving twin daughter sustained me. I am facing foreclosure on my home. I have lupus and multiple health problems. DAUGHTER WHO DIED HAD METASTATIC OVARIAN TO PANCREATIC CANCER SHE NEVER REVEALED. Only after death autopsy let us know she probably had 3 months. Suicide is a choice. We should have choice!!! Huggles, Ellie
I totally agree with you, We should have a choice of life.I have seen terrible painful suffering, and it is part of a doctors obligation to help cure and to help end pain.
THE POOFAWAY SOLUTION
Numerous articles have appeared in national publications in recent months on problems of Medicare and aging but they have all overlooked a very simple and unusual solution to these problems. It is a solution that harnesses Silicon Valley talents to filling a serious social need rather than allowing these talents to be solely devoted, as they are now, to mindless pursuit of virtual-fun and Wall Street millions.
Despite all the computerized marvels that have propelled us into the microchip/internet/cell-phone age, technology has done nothing for the millions of dispirited residents in our nursing homes. As a result, we are still without one of the greatest aids that mankind might desire, namely: a device to permit each of us to painlessly and efficiently make the leap from this world to the next.
Having mulled over this technological need for months, I have thoughtfully put together a few of the specifications that would be desirable for such a device. I willingly offer them free to the mavens of Silicon Valley as a running start on the design of this remarkably useful new device.
As a first consideration, the device should be convenient to use, like a telephone booth. It should contain a coin box with a slot for quarters to be dropped in by users to activate the unit’s operation. There should be a large fan to cool and give a rush of fresh new air to the booth after each use. Also, possibly, although not necessarily, some background music of choice (jazz or classical) should be available if one wished to give a positive ambiance to the moment of transition. Lacking a technical background, I will have to leave to space-age scientists the development of a necessary power unit to bring about the desired result but that should be a minor matter compared with the digital wonders they have already brought into our lives.
The sequence of usage would involve four steps:
(1) enter the booth;
(2) put one or more quarters in the slot;
(3) make a choice of musical background; and
(4) touch a master switch knob.
With the last step, a powerful laser beam would be activated and the user would be painlessly and pleasantly vaporized and blown out a vent to the next world, leaving no trace, and making
available a spotless, electronically sanitized, unit for the next heaven-bound traveler.
I have tentatively named the device the “Poofaway.†It seems like a wonderful concept that would solve many of the problems of aging by giving each of us, for a few quarters, personal control over making the jump to what comes next. True, it needs a little work for its finalization but if we can seriously
contemplate spending billions on an anti-missile defense system, our Congressional servants in Washington should be able to
provide the modest sums required for this personally liberating device. Not only would Poofaway be useful to older citizens who feel that they have been on life’s merry-go-round long enough, but it would remove further financial burdens from younger family members and go a long way to solving the social security
and Medicare funding problems that Congress has so far been unwilling to tackle.
If enough citizens agree with the revolutionary new approach of Poofaway to freedom from old age and its ailments, our senators and representatives can be urged to get busy on the funding for this wonderful device without delay. Without prompt action, the country’s fast growing deficits may easily reach the point where even such essentials as Poofaway and bridges-to-nowhere are beyond Congressional consideration for funding.
It is true that some philosophic diehards among us may wish to endure old age’s creeping ailments but there is really no need for that kind of stoic self-punishment. Instead, much can be said for a society that would give us, if we so wished, a sensible and painless way to move on and conveniently bypass the impairments that so easily become the uninvited companions of our old age.
William Conrad
I hear the reasoning for the right to choose and agree. Where do I go to help fight for our right to choose dignified death over government demanded pain and suffering for self and family when death is imminent. Personally, one friend died last night, 2 others are waiting in pain to die and families are suffering also.